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Anthony the Anomaly

Posted · 68 Comments

Over the past couple of months our family has been trying to get to the bottom of Anthony’s hair loss.  For those who’ve asked, I thought I’d write an update on the situation.

Let me start by saying we’ve been extremely lucky in that none of our children have ever been ill. They are, in fact, incredibly healthy.  Some say a child raised in a dirty environment sometimes develops an excellent immune system and I think our family is an example of that given most of their early years…prior to coming into our lives.

Anthony, in fact, has always been a sparkling example of good health.  I’m not even sure he’s vomited in the four years he’s been with us. Aside from a few ear infections and strep throat, he’s done fine.

Sometime this summer I took note that his hair had changed a bit.  It seemed coarser than before and perhaps a bit lighter. I attributed the color change to the sun.  After all, in Alaska, the sun shines all summer long and we take advantage of every waking moment to be enjoying the daylight.  And the texture…well, my brother’s hair changed around that age from soft to coarse and so I assumed it was some kind of pre-teen hormonal change boys must go through.

But just before school started my mom came down to give them their haircuts and when she got to Anthony, she was startled by his hair.

“His hair is mostly gone!” she said.

It was true. I’d not really noticed.  How could I not have noticed?  What kind of mother doesn’t notice their own kid is losing their hair?  The kind whose kid wears a baseball hat every day, I reminded myself. The kind who’s kid has outgrown mom washing his hair.  The kind whose kid  spends all day outside running around in the muck and rarely holds still long enough for anyone to pat him on the head.  That’s who.

And so I took him to the doctor in Homer, about 45 minutes away, that week.

They drew blood, shrugged their shoulders and said, “I dunno…” or something to that effect.

A week later when the results came back they told me his white cells were just slightly elevated…his red cells were slightly low…and his kidney function was abnormal.

Yeeeeaaahhh…whatever that means.

I’m medically ignorant.  So the first thing I did was Google.  Wow, you wouldn’t believe the things that come up with you Google hair loss combined with weight loss and those blood test results.  Scary.

The problem is, he didn’t have any other symptoms.  Other than some weight loss, being a bit pale, and the obvious hair loss, he’s perfectly fine.  High energy, good appetite, sleeping well. Nothing unusual going on at all.

The Homer doctor wanted me to have him tested again in three weeks. And so we did. Same blood tests, same basic results.  When I asked the doctor what we should do, the answer was again, “I dunno…” or something similar.

And so I went to my friends. I went to Facebook. I looked for others in the same situation.  I found a lot of people had been in similar boats.  I found a lot of possibilities.  I found a lot of support.  But I still couldn’t find anyone in the exact same situation who had come up with a solution.

Alopecia, many suggested.  Yet his particular kind of hair loss didn’t match up with the symptomology.  It was only his head, not the rest of his body, and the texture and color changes suggest there’s more to it.

Anthony's hair before...

Anthony's hair now....notice the skin showing through...

Meanwhile…his hair was getting progressively thinner. I’m not talking about “Oh, there’s hair on my hand when I shampoo.”  Everybody goes through cycles with their hair. I’m talking this kid went from super-duper thick healthy hair in May…so thick he looked like a Chia Pet in the mornings… to ‘see-thru’  and wispy by September. The color is significantly lighter.  The texture is completely different. It’s somewhat ‘wrinkly’ rather than poker straight…and it’s about 80% gone…and still going.

Thyroid was the biggest possibility, according to those in the know, and so I made an appointment with one of the few endocrinologists in Alaska.  Three weeks and a five hour drive later, we were in.

Monday I drove to Wasilla and spent the night with my brother and his family.  We saw the doctor first thing Tuesday morning.  He scanned the reports from Homer…discussed the results…and said.  “Huh….”

Huh.

He mentioned many of his numbers were ‘within range’…which I’ve since learned the ‘range’ is up to interpretation, depending upon the person reading it.  Some believe the ‘range’ for thyroid is far too wide.  The doctor was also honest in saying he didn’t believe it to be thyroid, because the test they did in Homer is a reliable type of testing.  Though I’ve read about people with thyroid issues who say, “Ignore the labs…go by how you feel.”  Yet I need a diagnosis to get treatment…so the labs are fairly important.

And then the endocrinologist said the issues may be out of his expertise.  In other words…. “I dunnooo….”

He sent me to his nurse so she could play Vampira with my son.  She wrapped the strap around his arm, stuck the needle in and began to pump.

Very quickly his entire arm went white. I’m talking blood drained, printer-paper, white, from the shoulder down.  And then, obviously, the blood stopped coming out.  And then Anthony began to cry because apparently, when blood isn’t coming out, it hurts more.

She withdrew the needle and he rested back in his chair, sobbing quietly.  And then, things got worse.

Anthony’s entire body went stiff. He straightened out in his chair so his whole body was stiff and his legs stuck straight out, though he was still seated.  And then he began to convulse, shaking all over. His eyes rolled back, his head tipped to the side and he was out.

Now like I said, I’m medically ignorant.  I know how to apply a bandage and that’s about the extent of it. I didn’t have a clue what was going on.  The nurse calmly says, “It looks like he’s having a reaction….”

No shit.

I bent over him and rubbed his arms and face until he opened his eyes.  He startled, tried to sit up and said, “Did I just faint?”  Yea…pretty much.

So we gave him a box of juice and got him the heck away from that place.  Whew.

Meanwhile, the doctor decided to test for four different things.  He’s running another thyroid check.  He’s looking at his iron levels.  He’s checking him for Celiac Disease (because of the weight loss) and he’s having a closer look at his blood…to check out the cell structure rather than just do a count.

This morning the nurse called to let us know she didn’t get enough blood out of him to perform all of the tests…so we’d have to go get some more drawn in Homer.

Right.  I wonder if she wants to be the one to tell Anthony that one…

The end result is, if we don’t get some answers soon, we’ll take him out of state.  Alaska is not known for quality health care…and Seattle is just a three hour plane ride away.

 
 
68 Responses to "Anthony the Anomaly"
  1. Marri says:

    Have you written a follow up post yet?

    • No, I have not. Anthony’s hair stopped falling out. It is still extremely thin and not growing back yet…but it stopped falling out. We ran out of tests to run….nothing seemed to be wrong! So we are on a “wait and see” period…assuming perhaps the hair loss was something environmental, like a mold or allergy in his bedroom that has gone away with winter time….not really sure.

  2. Friday says:

    I’ve learned to have my daughter lay down when they are going to have to draw blood.  I also make sure she drinks water and has a good breakfast.  The passing out things sucks.. scares them and makes the staff all weird.  She’s 14 now and it still happens and she says she wants more piercings….

  3. Sam says:

    I hope you find answers soon, that is just terrible. I was one that mentioned alopecia and no, that doesn’t resemble what we went through at all. There is nothing worse than being a medical mystery. Than kyou for the update, we’ll be thinking of you guys!!

  4. KayCee says:

    Keri, you, Anthony and your entire family are in my thoughts and in my prayers.  I hope that you find answers soon, and your precious Anthony continues to feel well.

  5. Kristen Oneal7 says:

    Good Luck!!

  6. Michelle says:

    p.s. what does his tongue look like? 

  7. Michelle E. says:

    Been a nurse for 16 years and the response he had to the blood draw seems consistent to a vasovagal response instead of a seizure.  He would have been foaming at the mouth, most likely lost bladder and bowel control and been very very disorientated for 20-30 minutes after the seizure.   It also sounds like you may have to see a Pediatric Rheumatologist and make sure that he has a stool sample taken to rule out hookworm.  God bless.  

  8. Swygant says:

    Keri that “event” that happened during the blood draw sounds like a seizure. I have minimal medical training (in school for x-ray) but my 6yo has had seizures just like that. He would go stiff, then convulse, then go to sleep right after. My son has had kidney, GI, and motor skills issues too (because having a kid with multiple issues is just more practice for my multi-tasking skills, right?) I don’t mean to scare you, but I would go to Seattle soon because IF it was a seizure that could mean whatever is attacking his body is progressing. You want to figure this out sooner than later. It could just be a thyroid issue, or adrenal, or whatever. But I would head to a children’s hospital and get a full work up. It may be inconvienent but keep in mind you wouldn’t ask the oil change place to diagnose your truck…you would take it to a truck mechanic. General doctors know a little bit about lots of stuff, but not specialties. And you need access to a group of different peds specialists, because you don’t know what is causing these symptoms, and which you can find at a children’s hospital. My son goes to Joe Dimaggio Children’s Hospital in South FL, and it makes all the difference. Everyone works together on a kid’s level to make things not as scary. They keep the wait times down, and work together better than seperate specialists usually do. Plus they have video games and cool stuff. Good luck and know you have lots of people here praying for you to find an answer!!

  9. Billeen Carlson says:

    I had that exact same reaction to a blood draw.  I woke to blood all over the walls and a VERY upset nurse who was holding me to my chair by my neck.  “You have to TELL people you do that!” she said.  SOR-RREEE!

    I hope you guys get things figured out!

  10. Jayredux says:

     I can’t think of a resonable thing to say so I’ll just go with Ahhhhh Honey! You and Anthoney will be in my heart. I hope it’s just some odd  thing that will pass without too much trouble for your family.

  11. Roxanne says:

    A friend with a thyroid condition told me this is how she checks herself  – she buys a food grade iodine (from a health food store – in a liquid form – a little thicker though); instead of taking it internally, she puts it on her inside arm (easier to see than the hairy side), and as the skin is the largest organ that absorbs, she watches to see if it absorbs the iodine quickly or slowly.  The days when her thyroid is not good, the skin will suck up that iodine quickly, and she’ll put some more on … other days if it’s doing better it’ll take a long time for the liquid to disappear, and then she knows it’s doing better.  Just thought if you were curious as to whether or not the thyroid is functioning well – this could be a good experiment to give you some idea.

  12. Granny Franny says:

    Oh, Anthony, and all the family – what a scary story! Especially that bit about convulsing in the chair after being sucked basically dry of blood.

    Bless this lovely lad, and may his physical Anthony Anomalies resolve themselves very soon.
    I loved what this boy said pre-adoption : nothing about toys and video games  – EVERYTHING about love, acceptance!
    New to your blog – love it! Im an Australian living in Thailand working with refugee children.
    you speakin my langue momma!!

  13. what a great mom! Take him where ever he needs to go until they figure this out!

  14. MaidMarian says:

    I volunteer to make cool hats for him till someone finds a fix.

    • Katharyn Roberts says:

      MaidMarian, you are cool! I love your “Let’s do something practical to help how the kid feels about himself in the meantime” approach! Go, You!

  15. MaidMarian says:

    B.C. is closer!

  16. My4sons says:

    How traumatic!! I am praying for Anthony and answers. Thank you for the update.

  17. maria robinson says:

    I know u don’t know me from Adam, but if u receive a celiac disease diagnosis please feel free to call me and I can help u out!  My daughter, Rachel (almost 14) has been diagnosed for almost 11 years now!  

    As a mom, my heart goes out to you and your son!  I am praying for quick answers for you! 

    Maria Robinson, Anchorage (753-1110, cp 317-5248)

  18. Frecklesfade says:

    I would say “Seattle, here we come!” When you said he went stiff and convulsed etc. I would be panicked. Something is REALLY wrong don’t wait. I am here in Washington and I can say we do have the best hospitals around. Childrens is the best! Get here quick.

  19. Sunnymomsalter says:

    O my gosh the poor little guy! I went thru my mystery illness at about 9, had to have many vials drawn every Monday for 6 weeks and still got a huh…go to Seattle. Met some Dr flown in from Russia? Press them to send you to Children’s. So many experts, the whole place is relaxing and welcoming for children, and mom too! Very supportive and full of resources. As for the nurse in Wasilla, around here that would smell like a lawsuit… We are praying for you! And call me if you come down!

  20. cares_about_alaska says:

    So sorry for your experience Keri  and for what Anthony is going through.  I’m shocked at your experience with the doctor in wasilla, he’s known for being alot better than that, don’t understand his lack of concern.  His nurse that draws blood….well she’s an idiot, new there and an idiot.  Don’t like her at all.  It does sound as if it’s time to take him Outside.  There have to be more resources than here in AK.  I’m praying for you guys and hope someone soon will take this seriously and get to the bottom of it.

  21. April Collins says:

    Oh, I am praying so hard for you guys. I know you must need answers with every part of you. Keep fighting. They call what Dr.s do practice. Go with your gut, you may not know the diagnosis, but you know one is needed. 
    I would continue to stress that environment (food) is the cause of so much more than Dr.’s are willing to admit. Please start with making sure his diet is as chemical free as you can possibly manage. It may not solve the problem, but it can’t hurt. If it is something else, then nutrition may be the added thing to help him get over it. 

  22. Sue Blakeman says:

    My reaction is University Medical Center, Research Hospital, Seattle! That blood-draining arm and all-over stiffness got my attention. I am NOT any kind of health care pro, but I’m not young and that strikes me as more weird than his hair loss. You and Anthony are in my heart and on my mind. Much Love.

  23. Willwalkbyfaith says:

    Oh. May God bless you through all of this. Better yet, dear Lord, please bring complete healing upon Anthony, through and through, by your love and mercy, in Jesus name, Amen!

  24. hhkestrel says:

    Our prayers are with you and we hope you find the answers you need very soon, in Alaska or Washington.  Please don’t quite pushing the doctors though.  I wish I had pushed more with my mom’s doctors.  At 65 we took her in for what they called pneumonia 5 times in 2 months.  Then in month 3 they said “oh, it looks like it is really end stage lung cancer”.  I let the doctors shrug and say “don’t know” and waited for her to get better.  I don’t know that it would have changed anything, probably not, but I wish I had pushed harder.

  25. Im54_not45 says:

    Have they tested for heavy metal?  When my brother had chemo he lost his hair and when it came back, it was curly, and almost black.  Prior to chemo it was blond and straight.

  26. Elfie_laa says:

    Without reading all the other comments, I’m sure I’m going to see a lot of references to naturopathy, holistic medicine, homeopathy, allergies, and stress. My family experience: hair loss is a hormone change and a stress reaction, combined with a food sensitivity and a vitamin deficiency. The blood doctors (mainstream medicine) are going to scratch their heads a lot. I am a firm believer in a balanced approach between the holistic and the medicalistic. You’ve got your mysterious test results, and a naturopath/homeopath/wackopath is going to be able to interpret those results in relation to a very personal and esoteric interview with Anthony regarding his body temperature, his food preferences, what time he wakes up in the night to pee, what time he crashes for a nap, and what he feels like when he wakes up. Tests may consist of trying to resist the naturopath’s push on a foot or an arm, reading his irises, and examining his fingernails, too. When the science doctors scratch their heads at the numbers, it’s time to call upon the shamans for a less literal interpretation of the results. A combination of all of these will help heal him, and you will expand your vocabulary tenfold.

    Good luck. You have resources and options and hope for just about anything thrown in your path when you combine science and tradition.

    • Katharyn Roberts says:

      I am so sorry for the pain, confusion and lack of answers your family, and especially you and Anthony are going through right now! That sounds just horrible. Hard for Anthony that he kept it to himself, hard for you that he didn’t share, and hard for you that you’re doing the right thing, looking for answers, and getting none.

      In reply to Elifie_laa, I wonder if hair sampling like this http://www.hairtestinganalysis.com/ would be good if you wanted to go down that path? The other thing that I remember is that http://www.dartnellspharmacy.com.au/service.html was very good with my friend’s unexplained hair loss, and their potion fixed it. Off topic, but what they sold me & suggested I do for glandular fever turned me around 180 and stunned the doctors. If it’s all too much for you, and you want me too, I’d be happy to email them and ask if they know anyone in The States who can be a “local” compounding pharmacy and mix up what they recommend for you. Would love to help, but don’t want to push in where not needed either! xo

  27. Lori says:

    Poor Anthony!  And poor you, too.  I’m sorry he has to go through all of this.  I’d definitely want to take him someplace where you know there’s great health care.  Staff at a Children’s Hospital have all kinds of tricks to help kids feel comfortable—I hope there’s one in Seattle that can help Anthony.  

    Btw…did you ever update us on YOUR thyroid issues?

  28. MAC says:

    Wow, I hope you find a solution soon.  That is so scary when it is your child.  Prayers being sent to your family.

  29. Laurajoem says:

    I am praying for you and the family. I hope they get you some answers soon. I’d say thats not any kind of alopecia. I pray the little one doesn’t have anymore seizures!!! Hang in there mom! I know you want to scream and cry and maybe hit a doc or nurse, but be patient were all praying for you guys.

  30. Tjeromi6 says:

    Seattle is definately a good place to go.  !   With his blood counts being off and all AND with the weight loss, not to mention hair loss ??!    does he have any glands that are swollen ? Under his arms, neck, or groin areas ????  Try calling Childrens Hospital in Seattle they have some awesome specialists there that Im sure have seen his symtoms before.  Prayers to you and your family !   
     

  31. Beverlyrharris says:

    I get confused when everyone has really good ideas what to do, but my thought is to start dialoguing with a children’s hospital and get your doc involved doing this as well. That way you will have a clear plan when you get there. (Did I hear Portland mentioned?) They are the best in dealing with pediatric issues and tapped into the best research and resources for children. We are blessed to have this resource in CO.   

  32. Moosiemomma says:

    Oh my. You all have my prayers. Ok Anthony is a smart kid, get him a notebook and have him write down how he is feeling and reflect on the backwards of what is happening. This might give some more clues as to what is happening. And you add to his notebook what you have observed. This keeps a record of things before they are forgotten at the doctors and might give an invaluable clue to what is going on with the boy child.

    • April Collins says:

      and possibly what he ate (or didn’t feel like eating) or any other symptoms that feel normal to him or strange. 

      • Katharyn Roberts says:

        April, you are cool! I love your “Let’s do something practical to help how the kid feels about himself in the meantime” approach! Go, You! 

        • Katharyn Roberts says:

          OK, sorry April, your idea was good, but I stuffed up with that reply. Hopefully moderator can scrap both of these comments. 

  33. I’m so sorry! I’ll keep praying for your little man Anthony and for the answers you so desperately need. I know he has already been through so much in his short life but he will get through this as well! Hugs for the whole family. Seattle has a great children’s hospital and I’m sure they will find the problem.

  34. Michelle says:

    I think it may be thyroid.  “Normal range” is not accurate. I tested normal for 2 years all the while telling my Dr. something was wrong with my thyroid.  They only finally listened to me when they felt a lump on my thyroid. My tests were still normal even though I had advanced Hashimoto’s disease and thyroid cancer. My tests continued to show normal even for a while after I had the thing removed! Keep trying different Dr’s. I went through 6 before I found one who I felt like actually listened to me. Never ignore gut feelings.

  35. Dragonfly Moon says:

    If you are willing to go to Seattle let me suggest coming a bit farther and going to Dornbrecher’s (I’m spelling it wrong) Children’s Hospital in Portland.  They are Amazing, and geared, obv, specificlly towards children.  Having had a sick kid (cancer) I’m going to join the voices saying don’t just accept the doctor’s answers.  This is no different that the fighting you’ve done with the school systems and judicial systems to get your kids what they need, it’s just another side of the coin.  Ask questions.  Find out if you can have a social worker assigned (California does it automatically for kids with life altering diseases and ours was a godsend.  She took better notes and asked better questions than I could when handed some new piece of bad news.) or have someone go with you to help take notes and so you have someone you can say ‘did he say this or this?’ to.  It’s a little thing but it can be huge.

    Good luck!  You are all in my thoughts and prayers.

    • Katharyn Roberts says:

      Having someone else take notes is a great idea. If it just can’t be organised, perhaps you can ask at the start of each appointment if you can record it. YOu could use anything. An old dictaphone from eBay, right through to an ipod, if there is one, would do the job. 

    • Amy says:

      I can vouch for Dornbecher as well (and Denver children’s hospital, and Mayo Clinic pediatric cardiology), and there’s nothing better than going to a children’s hospital where their expertise is in dealing with children….everything from the clinic/hospital environment to staff to all aspects of care.     Hoping for speedy answers for you…  Good luck–

  36. Stephanie Fraser says:

    I am so sorry!  I will keep y’all in my prayers.

  37. Kelley Vance says:

    Be insistent. Remember: doctors are people too. They can make the same mistakes everyone else can. If you’re not satisfied with the quality of treatment, take him somewhere else, absolutely. I had to take my mom out of FL to Mayo Clinic in MN for an entire summer. Seattle is closer, and there may be a bush pilot willing to take you on a milk run with him. Iron out everything with your insurance before you go – it’ll be less stress on you.

    Educate yourself, but don’t get the crap scared out of you by the computer. And also accept that sometimes, there is no answer, and you just have to treat the symptoms. Unfortunately, that’s what happened with my mom. And it’s trite, but ‘that which does not kill us makes us stronger’. Sometimes I just wish God had a little less faith in me. 😉

    I’ll be praying for you guys.

  38. Kim Turner says:

    Poor Anthony! 
    We have GREAT hospitals here on the East Coast for kids if you don’t find answers in Seattle. Nemours/A.I. DuPont Childrens Hospital, C.H.O.P, and Johns Hopkins just to name a few. 
    I really hope you find some answers for him soon.  You guys are in my prayers. 

  39. Dhillyard says:

    I’ll be praying for you and Anthony! I would also like to suggest that you Google Dr. Broda O. Barnes. He was our family MD and wrote several books about thyroid malfunction. He felt that low thyroid was grossly underdiagnosed and was the hidden cause of many other problems. Would also suggest that if Anthony ends up taking thyroid medication, you should insist on them prescribing Armour Dessicated rather than something like Synthroid. The doctors will tell you that there is no difference between the natural and synthetic, but it is not true.

    My father was taken off of thyroid medication in his later years when he was fighting prostate cancer, and his hair went from dark brown to reddish brown, and it had that strange crinkly texture.

  40. Theresa Wiggs says:

    You need to be ‘mamma bear” right now.  Get between Anthony and the doctors and roar really loudly.  Sometimes even well meaning medical professionals need a wake up call to do what is right.  Good luck. Anthony is lucky to have a great mom–you will find an answer–I can feel it in my bones when I read the account of you 4 month struggle.

  41. Amy Tuggey says:

    Yipes…I feel for you both. I am sure answers will be forthcoming, you seem to me to be the kind of mom that won’t settle for “dunno”.  (Too many doctors today falling back on that one as if we would just say, “Okay”) ???? Really ????

    Please keep us updated and let Anthony know he is being prayed for 🙂

  42. Stuart796 says:

    My bet is still on Thyroid… he has classic symptoms,,,, Don’t wait to go the Seattle.. go now!  They have some of the best medical in the country. 

  43. Lara Rogers-Mcginnis says:

    I agree, bring in Dr. Kylonnen..I believe the passing out is a bigger part of the puzzle then they are acknowledging.  My first thought as I was reading is annimia.  I also just learned that thyroid imbalance can cause you to loose the pigment in your hair – i.e. premature grey or in his case blond.  Just some quick thoughts.  

    • Erika says:

      Yup, my sister had an over-active adrenal gland that burned out her thyroid.  She gained weight instead of lost it, but ended up with losing most of her hair and then having a large portion of it come back in grey, so she has a grey streak through her hair and she just turned 30.  She still has problems because the doctors just kept treating the symptoms until she almost died.  NOT where you want to be.  Keep at it, Keri!  Don’t take “huh” for an answer. 

      • Lauren says:

        I wondered about an adrenal connection too; he certainly had enough stress to get them right fired up, and that would knock on to his thyroid, but it’s funny that it manifests now. Maybe you’re on to something with the puberty connection on that. Crispy hair is definitely a thyroid thing. FWIW my naturopath said that hair starts falling out 3 months AFTER the trigger event/condition, because of hair growth cycles.
        Blood ferritin was good? Anemia would cause pallor, weight loss and possibly seizure (how terrifying for you both!), as iron contributes to nerve conduction: http://www.thewayup.com/newsletters/081504.htm
        All that could beexacerbated by gut problems – allergies or damage that reduces nutrient absorption.
        But his kidneys… ?
        I’ve got a health series on my blog right now (letospassion.blogspot.com) as I’m working through one of these “huh” things, but in my case kidneys were not a concern so I don’t have any reasearch in my pocket on that.
        We are all wishing you both the best on this. It’s scary, frustrating and stressful, which is exactly what neither of you needs. I wish you strength and answers.

  44. Crystal says:

    I’m witht the woman who suggested the Naturalpath. And I am praying.

  45. You might try to take him for testing at a Naturepathic doc–T Pillsbury in Eagle River helped my daughter with a rare hormonal problem last year.  They don’t have to take gallons of blood–the crinkley, lighter and thinner hair is a clue, along with the rest.  They look for just exactly this type of symptomology. Hang in there, Anthony–and you too, Keri.   It can be very scary…I woudl suggest you try the naturepathic before you run out of state..

  46. Elisabeth Knottingham says:

    I have a stunningly great endocronologist here in Seattle, who has saved my life and that of a close friend.  There are also wonderful ones as Childrens and I know my god daughter has a child’s endo here in town as well who’s quite good.  Please, let me know if I can help you find one here if you decide to come down.  (PS To me, this sounds like something endocrine related, particularly the blood reaction).

  47. Tammy Sexton says:

    Praying you find answers SOON!

  48. Pendragonsquest says:

    Praying for you all! __

  49. vanessa says:

    This breaks my heart.  My children have been going through alot of medical testing for the last year – and all the doctors had the same answer.  Huh.
    It was test after “normal” test, doctors looking at me like i was crazy – and alot more of no answers.  UNTIL . . . i went to a holistic clinic.  One meeting with them, sent us on a life changing path, for something i’d never heard of.  But my children are HEALING and the change is night/day.   I desperately ask you to consider an “alternate” health care approach.  It isn’t cheap (at least for us, since our insurance doesn’t cover it) but with an entirely homeopathic treatment (mineral, vitamin, etc) my oldest kid is like a different child, one I barely even recognize (in a good way).  I’d be happy to share more about the type of care you might find, if you are interested . . . . v_blakeway@hotmail.com
    P.S. we are in the Denali area – so I totally get the healthcare reference 😉 

  50. Lks says:

    Oh my…poor lad.  He is not supposed to react to loosing such a small amount of blood.  Anthony darling, just tell you mom what is wrong and she will get it fixed!!  Geesh Keri, I am so sorry for all if you..if there is anything…

  51. Wow, you guys have had it rough lately. I say try Seattle as soon as possible. I’ll be praying.

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